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Cystic fibrosis (CF) is one of the UK’s most common, life-shortening, genetically inherited diseases. There are currently more than 10,500 people in the UK with CF with an annual expenditure for CF in England of approx £100m, (£9,500 per patient). In the last 50 years there have been major advances in CF care, however each new therapy has added the heavy burden of treatment. The aim of this project is to investigate if a new model of care has the ability to engage children and adolescents with CF in self management and as a result, reduce the burden of care.  

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